Being a Special Needs Grandparent

Being a Special Needs Grandparent

  What is it like to be a special needs grandparent? It’s so complicated. It is… …hard …wonderful …sad …joyful …emotional …trying …difficult ….rewarding ….so many things It is an entire range of emotions. Emotions felt not only for my grandchild, but also for my own child who bore my grandchild. Would I wish Brielle hadn’t been born? […]

Special Needs Moms and the Superhero Myth

Guest Post - Beautiful In His Time

Are you special? Or just like other moms? There seems to be two opposing messages out there in the special needs community. Which do you believe in? 1. The Special Needs Mom Super Hero Myth; or 2. The Belonging Myth     Have you considered YOUR role in perpetuating these?   Check out the full […]

Good Things About Being a Special Needs Mom

Good Things About Being a Special Needs Mom

I Am a Special Needs Mom …And It’s Not All Bad Huh? There’s good things about being a special needs parent??? Yep. There are. Probably even a few things that might surprise you if you aren’t a “member of the club.”   Before you peek…. What are you guessing I put on the list? handicapped […]

Your Special Needs Child’s Private Parts

Special Needs Child's Private Parts

It’s Time to Talk About Your Special Needs Child’s Private Parts No one talks about it. No one wants to even write about it. But, I’m going to be bold and do it here. So, brace yourself….. (In the end, although there are few unique circumstances to consider for the special needs child, it’s basically the same […]

My Wish for My Special Needs Child

My Wish

  My Wish for My Special Needs Child I wished… …for a healthy pregnancy. …for a healthy baby. …for a baby that was calm and easy-going. …for a special bonding experience breastfeeding my baby. …for a toddler that learned to walk with ease. …for a toddler that learned to talk with ease and clarity. …for […]

Marriage With A Special Needs Child

BK kiss on bench - Married

Marriage With a Special Needs Child Does Not Always Mean a Struggle Half of all marriages will fail. Marriages with additional challenges, such as a special needs child, are even more likely to fail. Brian and I have been married for over 24 years. Sometimes it seems like we’ve been together forever. Other times, it […]

The Failure of Special Needs Equipment

Special Needs Equipment

  Special Needs Equipment Required When you have a special needs child, you’re destined to have special needs equipment. Special cups, utensils, writing tools, scissors, zipper pulls, car seats, positioning chairs, bathing chairs, wheelchairs. We’ve certainly had our share. Some have been very useful, eased our care for Brielle, and improved her quality of life. Others… not so […]

Special Needs Grandparents are Special, Too

Grandparents - Special Needs Grandparents Title

Brielle’s Special Needs Grandparents We’ve never lived closer than over three hours away for our kids’ grandparents. We’ve done the best we could over the years, but it’s certainly been a challenge. From Chaphter 24: “Friends and Other Strangers” of my book, Brielle and Me: Our Journey with Cytomegalovirus and Cerbral Palsy: Family as Friends […]

High School IEP Meeting

High School IEP Meeting

The Dreaded IEP Meeting It’s the thing that strikes fear anxiety into the hearts of special needs parents everywhere. Your special needs child brings home that letter announcing the date and time of their annual IEP meeting… <cue the dramatic music> ..and BAM! Your heart starts racing. For us, the letter came a few weeks […]

Hiatus Over: Welcome Back Inspiration and Focus

Dear Readers

My Hiatus Is Over What? You didn’t know I was on hiatus? Yep. I was. Since the end of May. It wasn’t exactly planned. It was one of those… Oh-my-goodness-I’m-so-overwhelmed-and-my-heart-is-not-in-this… moments. After all of the work doing final edits, publishing, and marketing my book, Brielle and Me: Our Journey With Cytomegalovirus and Cerebral Palsy, I […]